Help 12 Year Old Uttam Soni get a Bone Marrow Transplant
Uttam Soni is a 12 year old boy suffering from genetic blood disorder - Thalassemia. In Thalassemia, the body has fewer red blood cells and less hemoglobin than it should. There is no cure. Uttam has to do blood transfusion once a month, do blood tests and take expensive medicines.
Uttam's father earns Rs 8500/ month ($150/ month) as a worker in Indore's jewelry market. His mother is a house wife. Despite these difficulties, Uttam Soni has been able to study and lead a relatively normal life by being ' adopted' by Thalassemia and Child Welfare Group (TCWG) who has helped over 200 children with this disorder since their inception in 1996.
Now, Uttam has a chance to have a normal childhood and adulthood by getting a ' Bone Marrow Transplant' from his older 18 year old brother Arpit as his donor.
Thalassemia and Child Welfare Group ( TCWG) was able to secure India's leading expert Dr Dinesh Bhurani who has successfully conducted over 600 BMT procedures . In addition , TCWG secured Rs 300,000 ( $5000) from Prime Minister's Relief Fund to help Uttam.
Uttam needs funds equivalent to Rs 15,00,000 ( $250000) for the Bone Marrow Transplant procedure in New Delhi , In addition, these funds will help him stay in New Delhi for a period of 90 days after this procedure.
Uttam's positive attitude, infectious smile and love for life rub off on anyone that meets him.
Please show your generosity by donating today to help Uttam.
Go to http://thalassemia-childwelfare.org/
Click on ' Donate Now ' and contribute to secure payment gateway.
Thalassemia & Child Welfare Group is a women led ,youth driven NGO working to save lives of poor children suffering from incurables disease. Our primary focus is Health and Education of poor children.We serve the children affected from Thalassemia, a blood related fatal disease.We also help them get affordable quality treatment to help in building a bright ,healthy and empowered future.
Future of India is 'Healthy and Educated Child'.
Honesty, Responsibility, Dedication and Completion of Undertaken Project.
We work for prevention, cure and awareness of thalassemia -a fatal disease, Over 200 thalassemic patients from all over the state of MP are registered with us under this project. Organize regular blood donation camps. Arrange for required blood tests including serum ferretin and electrophorosis for thalassemic patients. Providing kelfer capsules and desirox capsules and other expensive medication for patients at highly discounted rates .
Promotion of child education in rural areas of state of Madhya Pradesh(MP). Complete medical help including tests, surgery, hospitalization, medicines to poor children suffering from incurable diseases like brain tumor, heart diseases, cancer etc. Organizing interschool competitions and awareness camps. Work for empowerment of street children. Welfare of handicapped children. Rehabilitation of child labor. Encouragement and promotion of talented students.
A residential school ' Ashraya' for street children. Ashraya is a new beginning by Thalassemia & Child Welfare group in the direction of building sustainable projects for child welfare. This project is aimed at building a Rehabilitation home and Residential School for Street children. Detailed Plan and Budget can be shared on your expression of interest.
Before sharing this news I wanted to thank GOD as without his blessings this was not possible . In my lap is Himanshu Parmar a four year old thalassemia patient son of Satish & Ranjita of village Betma . On 28 may 2017 his HLA was matched with his real brother Aditya in a camp organised by TCWG , his match was positive so dr j s arora advised us for his bone marrow transplant , so he was registered in rajiv Gandhi cancer hospital delhi for BMT , with the help of dr dinesh Bhurani & his team dr narendra Agrawal , dr rayaz Ahemad, dr Pallavi Mehta, dr Shinto Francis& dr Pragya bhandari process of BMT startled on 28 July , it was a long & risky process with so much care to be taken , we were fortunate to have with us dr dinesh Bhurani as BMT expert , after one moth stay in rajiv Gandhi Hospital three months stay in delhi in a isolated clean room in delhi near Hospital , both parents were so obidient , they followed each step very sincerely , finally now he is declared out of danger & free from thalassemia . On 6 Nov he reached betma , now he is under medication for one year with visit to delhi after every fifteen days , for us & for his parents it is like a miracle , ten lakhs we get from gov & coal india , rest three months stay in delhi of whole family , food medicines etc were arranged by TCWG & his family both , in addition to this i visited him every month in delhi . We r really feeling very happy & wanted to thank God firstly Than to all doctors secondly & to his patents for believing in me & following my instructions , this shows how faith can conquer any disease & Himanshu conquered thalassemia , now he will lead a healthy disease free life
Same organisation - thalassemia and child welfare group same hospital - rajiv Gandhi cancer hospital delhi , same team of doctors with team leader dr dinesh Bhurani , same disease thalassemia but another child - Kunj Morya age eighteen months son of vashvant& Dropati from Shajapur m p he was admitted for BMT after HLA matched with his sister Tisha for BMT , I am proudly & happyli announcing his successful recovery from thalassemia after BMT started in august 6 , completed in Nov end . He has returned home few days back as thalassemia free healthy child , financial help from coal india for BMT rest by his parents & TCWG , today my heart is filled with joy जाको राखे साइयाँ मार सके न कोय thank you GOD for helping us & giving us all support from doctors our members & society
Himanshu Parmar age four & Kunj Morya age two are under BMT in rajiv Gandhi hospital delhi I am share their pictures with this post & requesting all kind hearted people to help them.